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DESATURATING OXYGEN, low heart rate on sleeping in infant.

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My infnat is 8 months old. He has many diagnosis without a real answer. He has been hospitalized most of his short life. He desaturates his oxygen when sleeping to the low 70's, without explanation requiring oxygen. Last sleep study showed 137 desaturations in 5 hours. and it did show various central apneas. back in February he had two different episodes where he wouldnt rouse to even eat and he wasnt reactying to anyone. Doctors who knew him persoanlly felt trying phenobarbital was worth a try. He is still on it. I took him yesterday to the hospital and they didnt draw a blood level on his meds, they took no labs no tests and the nuerologist whom I met once called and said since he looks okay after these episodes he doesnt think its seizres and to go home. With that being said he began last tuesday doing what looks to me like a seizure or convulsing, they last 3 to 10 seconds and they appear to come in clusters. when they begin they are back to back up to 10 or 15 times an hour all day long then nothing for 4 days or so then he does it again. The nuerologist who called and sent us home never examined my son and did NOT watch the video.
my question is do you think there is cause for worry with these episodes cause they are very disturbing to me.
also the night before he has had 2 bad days of this in the last week his resting heart rate was noted by the night nurses to linger in the LOW 40'S for 7 minutes or 4 minuters and they said he was very hard to rouse.

Category: Neurologist, Medical

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Category: Pediatric Neurologist
 19 Doctors Online

Thank you for posting your query at
I have noted the symptoms and watched the video of your infant son.
To me, these episodes look like seizures, which include 'drop attacks' and tonic seizures. These belong to the category of generalised seizures.
He should undergo more detailed evaluation including EEG and perhaps a brain imaging.
Anti-seizure medications would help. Sodium valproate syrup would be preferable in view of its broad spectrum of action.
Best wishes,
Dr. Sudhir Kumar MD (Medicine), DM (Neurology)
Senior Consultant Neurologist

Patient replied :

I sent my follow up question with additional new video to [email protected] because we are back in the hospital and I had a hard time sending from my phone.
Michelle Borna
[email protected]

Thank you for getting back.
I have seen the video, and some of his movements/screaming could well be seizure-related. However, EEG report would clarify the issue further. I hope they are are doing a video EEG, where the movements can be correlated with EEG graph.
Best wishes,
Dr. Sudhir Kumar MD (Medicine), DM (Neurology)
Senior Consultant Neurologist

Dr. Sudhir Kumar
Category: Pediatric Neurologist
Senior Residency, Fellowship: DM, Neurology, CMC, Vellore, 2001
Junior Residency: MD, Internal Medicine, CMC, Vellore, 1998
Medical School: MBBS, Christian Medical College, Vellore, 1995
Dr. Sudhir Kumar and 4 other Medical Specialists are ready to help you

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