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Flickering of eye with SUPERIOR CEREBELLAR GANGLIOMA.

Resolved Question:

Myself Mrs. Jayashree Pravin Ghorpade Mother of shruti Pravin Ghorpade
Age - 16Yrs. She was born on 26 May 1998. On the same day I obsereverd
that right eye of child is fickering for 2 to 5 sec after certain intervals.
My delivery was normal forcep delivery. Next day I had consulted Dr Mutha from Baramati.
he started Gardinal 30mg. But no effect ,same process of eye flickering, ommiting & she is
breathing very fast in that period. In Pune hospital C.T. Scan has been done at the age of 3 mths.
But reports are normal. After 3 months we have consulted Wadia Hospital Mumbai.
They refered to P.D Hinduja Hospital where Dr. Vrajesh Udani sujjested for MRI &
diagonised the case as right superior cerebellar penduncle ganglioglioma .
My child was operated at hinduja hospital on 26/02/1999 when she was
11 months by Dr. Deopujari Nerosurjan.
After operating ,Drs said that 90% tumour has been removed but 10% tumour as it is their.
Further she was having same flickring problem for last 16 years old patientbut frequency is less.
now she is studying in 12th science. She is fully independent. But from last 2 years old patient
she is having tremendous headache problem. and from June 2014 she is having major
seissors/convulsions for three times.
Recently on 11/09/2014 we have taken oppointment for Dr. Vrajesh Udani MD, Hinduja
Hospital. Dr. sujjested for EEG & MRI Contrast. After MRI it is obsereved that their are no
significant changes in the operated tomour .
I request you please sujjest me for further consultation that my child can cure from this
illeness she is suffering from last 16 years. Dr is suujested for furher operation in that Dr told chances of
right hand movement will not be in control, if gamma knife ,high radiation not suitable for child.
please sujest me for futher treatment. I will be very much thankful in anticipation.

Email ID : jayu838521@gmail.com


Category: Neurologist, Medical

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Category: Pediatric Neurologist
Dr. Sudhir Kumar is online now

Expert:  Dr. Sudhir Kumar replied 4 Days.

Hello.
Thank you for your query at DoctorSpring.com.

I have noted your daughter's diagnosis, current symptoms and medications.
I would like to point out that though a small portion of tumor is left ebhind, it is better not to go for surgery or radiation therapy at this stage. This is because of likely complications.

Medications should be continued to control the seizures and headache. With the medications, she will have relief of symptoms and go on about her daily activities.
Commonly effective medications are levetiracetam, oxcarbazepine and topiramate tablets. You can discuss this with your neurologist.

I hope it helps. Please let me know if you have any queries.

Best wishes, Dr. Sudhir Kumar MD (Medicine), DM (Neurology) Senior Consultant Neurologist.


Patient replied :

To
Dr.Dr. Sudhir Kumar MD (Medicine), DM (Neurology) Senior Consultant Neurologist.


Respected Dr.


Thank you very much for ur valuaable advise.

At the first time i have forgotten the medicines of shruti to your knowledge.

I am giving following medicines from last 1 Year & 3 Months as-

Topamac(50) mg 1--------------------1 daily

Levipil 750 mg 1 ------------------- 1 daily

After oppintment with Dr Vrajesh Udani Hinduja Hospital he advised to stop slowly

levipil by minimising dose within one month.

Now she is taking

Topomac 75mg 1----------------1 daily

Amitron 1 daily (only for 10 days means upto 22 sepetember)

Nafrostn(250)

1 ---------------- 1 (250)

Dr. My daughter is very positive. she wants to complete her 12th with good marks.

she is having 3-5 times eye flickering problem within hour. Please help me.

Your advise given me courage & positive way. I dont know why Dr Udani advised me to

take appointment for Dr B.K Mishra , Nerousurjan. As per your guidance if she will go on

with medications & her & she will be relief of her symptoms. I have uploaded her MRI report also.

Should I proceed for your medications? Only 2 medicines are goinig on Topomac(75mg) &

Nafrostn(250) mg

Thaning you in anticipation


Mrs jayashree Ghorpade

M/O Shruti Ghorpade




Expert:  Dr. Sudhir Kumar replied 3 Days.

Thank you for getting back.
Please follow the medications as per Dr Vrajesh Udani.
Appointment with neurosurgeon is just for opinion, and it may not be for another surgery.
I feel she would be able to do well with medications and do well in her examinations.
Best wishes,
Dr. Sudhir Kumar MD (Medicine), DM (Neurology)
Senior Consultant Neurologist


Dr. Sudhir Kumar
Category: Pediatric Neurologist
Experience: 
Senior Residency, Fellowship: DM, Neurology, CMC, Vellore, 2001
Junior Residency: MD, Internal Medicine, CMC, Vellore, 1998
Medical School: MBBS, Christian Medical College, Vellore, 1995
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